Privacy policy


The National Survivor User Network (NSUN) is a registered charity in England (no.1135980) and a registered company limited by guarantee (no.07166851). Registered office: NSUN, Kemp House, 152-160 City Road, London EC1V 2NX

This privacy notice explains how NSUN collects, uses and shares personal data, and your rights in relation to the personal data we hold. For these purposes NSUN is the Controller of your personal data under the General Data Protection Regulation and other UK data protection laws.

This privacy policy was last updated and is effective from May 2018.

We are committed to safeguarding the privacy of our members and website visitors; in this policy we explain how we will treat your personal information. This is central to our values as an organisation. We want you to feel confident about how any personal information you share will be looked after or used.

By using our website and agreeing to this policy, you consent to our use of cookies in accordance with the terms of this policy.

If you are not satisfied with how we are processing your personal data, you can raise a concern with the Information Commissioner (

Our privacy principles

You can be confident that:

  • We only use personal information in the ways we need to and that is expected of us.
  • We will only use your personal information if you have previously given us consent to do so.
  • We will keep you up to date with our work, current developments, useful resources and news from our wider membership.
  • We will make it easy for you to tell us how you want us to communicate with you, including how to opt out from future communications.
  • We will never release your information to organisations outside of NSUN for marketing purposes.
  • We will respect all requests for anonymity when dealing with sensitive subjects and people who are at risk.
  • We take all reasonable care to safeguard your personal information through security policies and secure business processes.
  • We will always provide easy ways for you to contact us. 

Collecting personal information

We may collect, store and use the following kinds of personal information:

  • Name and date of birth;
  • Contact details:
    • Telephone number
    • Email address
    • Postal address
    • Website
  • Other demographic information for equalities monitoring (e.g. gender, ethnicity, sexuality);
  • Credit/debit card details if we need to make a payment to you or if you make a donation or a purchase;
  • Your personal health and social experiences for projects, research and consultations; however, you can decide if you want to remain anonymous;
  • Your opinion and feedback in relation to any surveys or questionnaires issued by NSUN that you complete, such as feedback on our charitable activities and events; and
  • Any other personal information you choose to send us.

We also gather general information about the use of our websites, such as which pages users visit most, and which services, events or facilities are of most interest.

We may also track which pages users visit when they click on links in NSUN ebulletins. This information may be used to make improvements to our website. Wherever possible we use aggregated or anonymous information which does not identify individual visitors to our websites.

We may collect personal information from you when you:

  • Register as an NSUN member;
  • Apply for a paid or unpaid role within NSUN, for the processing of your application;
  • Donate to us;
  • Order materials or training from us;
  • Participate in a project or programme facilitated by us;
  • Complete a survey or questionnaire;
  • Contact us or become involved with us in another way.

Using personal information

Personal information submitted to us by email or through our website will be used for the purposes specified in this policy or on the relevant pages of the website.

We may use your personal information to:

  • Keep you informed about our activities and services through directed communications or newsletter (you can inform us at any time if you no longer require communications);
  • Process and respond to requests, enquiries and complaints that we receive from you;
  • Provide services or support requested by you and any related communications;
  • Analyse the personal information we collect so we can better understand our members and supporters, their preferences, needs and important trends;
  • Administer our website and activities;
  • Process Gift Aid claims;
  • Send statements, invoices and payment reminders to you, and collect payments from you:
  • Update and maintain our records or for auditing purpose;
  • Keep our website secure and prevent fraud;
  • Provide third parties with statistical information about our members (but those third parties will not be able to identify any individual from that information);
  • Meet any statutory or regulatory compliance.

All the personal data you provide is held on a central cloud database system (eTapestry by Blackbaud) and maintained by UK staff. All systems are password protected and no third parties have access to your personal data. Exceptions to this will only be in circumstances where the law allows them to do so.

We will not supply your personal information to any third party for the purpose of their or any other third party's direct marketing.

We have data protection procedures in place to oversee the effective and secure processing of your personal data.

All our website financial transactions are handled through our payment services provider, (STRIPE and PayPal). We will share information with our payment services provider only to the extent necessary for the purposes of processing payments you make via our website, refunding such payments and dealing with complaints and queries relating to such payments and refunds.

Disclosing personal information

We will only disclose your personal information:

  • If required to do so by law;
  • In connection with any ongoing or prospective legal proceedings;
  • In order to establish, exercise or defend our legal rights (including providing information to others for the purposes of fraud prevention and reducing credit risk).

International data transfers

NSUN does not operate in any areas that do not have data protection laws equivalent to those in force in the European Economic Area.

Personal information that you publish on our website or submit for publication on our website may be available, via the internet, around the world. We cannot prevent the use or misuse of such information by others.

Retaining personal information

This section sets out our data retention policies and procedures, which are designed to help ensure that we comply with our legal obligations in relation to the retention and deletion of personal information.

Personal information that we process for any purpose or purposes shall not be kept for longer than is necessary for that purpose or those purposes.

We will retain documents (including electronic documents) containing personal data:

  • That we are required to do so by law;
  • If we believe that the documents may be relevant to any ongoing or prospective legal proceedings; and
  • In order to establish, exercise or defend our legal rights (including providing information to others for the purposes of fraud prevention and reducing credit risk). 

Security of personal information

We will take reasonable technical and organisational precautions to prevent the loss, misuse or alteration of your personal information. Offline personal information is kept securely in our database and office.

We protect your personal information by:

  • Ensuring that all electronic financial transactions entered into through our website will be protected by encryption technology;
  • Storing all personal information you provide on our secure (password and firewall protected) servers;
  • Having secure payment processing partners for any debit or credit card transactions.

The transmission of information over the internet is inherently insecure, and we cannot guarantee the security of data sent over the internet.

We have links to other websites on our website. Please be aware that this privacy statement does not cover the information practices of other websites.


We may update this policy from time to time by publishing a new version on our website. You should check this page occasionally to ensure you are happy with any changes to this policy.

Your rights

You may instruct us to provide you with any personal information we hold about you. The provision of such information will be subject to the supply of appropriate evidence of your identity (for this purpose, we will usually accept a photocopy of your passport certified by a solicitor or bank plus an original copy of a utility bill showing your current address).

You may ask us to update your details, correct or remove information you think is inaccurate at any time.

We may withhold personal information that you request to the extent permitted by law.

You may instruct us at any time not to process your personal information for marketing purposes.

In practice, you will usually either expressly agree in advance to our use of your personal information for marketing purposes, or we will provide you with an opportunity to opt out of the use of your personal information for marketing purposes.

Please let us know if the personal information that we hold about you needs to be corrected or updated.

To update or access your personal information, contact us by:

Writing: NSUN, NSUN, Kemp House, 152-160 City Road, London EC1V 2NX

Email: [email protected]

Telephone: 020 7820 8982

Third party websites

Our website includes hyperlinks to, and details of, third party websites.

We have no control over, and are not responsible for, the privacy policies and practices of third parties.


Our website uses cookies. A  'cookie' is a file containing an identifier (a string of letters and numbers) that is sent by a web server to a web browser and is stored by the browser and downloaded onto your device, like your computer, mobile phone or tablet. The identifier is then sent back to the server each time the browser requests a page from the server.

Cookies let websites recognise your device, so that the sites can work, or work better, and also gather information about how you use the site. A cookie, by itself, can't be used to identify you. 

We use cookies to distinguish you from other users of our website. This helps us to provide you with a good experience when you come to our website and also allows us to improve our site.  

Cookies may be either "persistent" cookies or "session" cookies: a persistent cookie will be stored by a web browser and will remain valid until its set expiry date, unless deleted by the user before the expiry date; a session cookie, on the other hand, will expire at the end of the user session, when the web browser is closed.

We use the categorisation set out by the International Chamber of Commerce in their UK Cookie Guide.

We use all four categories of cookies:

  • Strictly necessary cookies are essential for you to move around our website and to use its features, like our shopping basket and your account.
  • Performance cookies collect anonymous information about how you use our site, like which pages are visited most. No information that identifies you is kept.
  • Functionality cookies remember choices you make to improve your experience, like your text size or location. They may also be used to provide services you have asked for such as watching a video or commenting on a blog. They are anonymous.
  • Targeting or advertising cookies collect information about your browsing habits in order to make advertising relevant to you and your interests.

You can opt out of all our cookies (except the strictly necessary ones). Find out how to control and delete cookies in your browser.

Most browsers allow you to refuse to accept cookies; for example:

  • Internet Explorer (version 11) you can block cookies using the cookie handling override settings available by clicking "Tools", "Internet Options", "Privacy" and then "Advanced";
  • Firefox (version 47) you can block all cookies by clicking "Tools", "Options", "Privacy", selecting "Use custom settings for history" from the drop-down menu, and unticking "Accept cookies from sites"; and
  • Chrome (version 52), you can block all cookies by accessing the "Customise and control" menu, and clicking "Settings", "Show advanced settings" and "Content settings", and then selecting "Block sites from setting any data" under the "Cookies" heading.

You can delete cookies already stored on your computer; for example:

  • Internet Explorer (version 11), you must manually delete cookie files (you can find instructions for doing so at;
  • Firefox (version 47), you can delete cookies by clicking "Tools", "Options" and "Privacy", then selecting "Use custom settings for history" from the drop-down menu, clicking "Show Cookies", and then clicking "Remove All Cookies"; and
  • Chrome (version 52), you can delete all cookies by accessing the "Customise and control" menu, and clicking "Settings", "Show advanced settings" and "Clear browsing data", and then selecting "Cookies and other site and plug-in data" before clicking "Clear browsing data".

Deleting cookies will have a negative impact on the usability of many websites. If you choose to refuse all cookies you may not be able to use our website properly.

You can also opt-out of Addthis tracking, although we think it improves your web experience.

Data protection registration

We are registered as a data controller with the UK Information Commissioner's Office. Our data protection registration number is Z2363662.

Our details

This website is owned and operated by the National Survivor User Network (NSUN).

We are a registered charity in England (no.1135980) and a registered company limited by guarantee (no.07166851).

Our registered office is at NSUN, Kemp House, 152-160 City Road, London EC1V 2NX

You can contact us:

By post, using the postal address given above

By telephone, on 020 7820 8982

By email: [email protected]

You can find out more about your rights under data protection legislation at