You will have been inundated with email notifications about the change in data protection law.

We recently sent the GDPR Privacy Notice below as it's important that you understand how we communicate with you and hold and use your data.

If you are an existing member of NSUN you do not have to renew your consent to continue to receive communications from us as you will have provided consent for us to contact you when you signed up as a member. Also, you will be aware that you can cancel your membership and unsubscribe from our communications at any time. 

GDPR Privacy Notice

The General Data Protection Regulation (GDPR) coming into force on 25 May 2018 introduces additional compliance requirements for all organisations, including charities and membership bodies. As a membership organisation, the National Survivor User Network (NSUN) holds personal data that you provided to us when joining by completing either an online form or paper form. The membership form only asks for basic personal data about you which includes name, address, email, phone number and demographic information (optional).

In response to the additional compliance requirements we have carried out an audit of what personal information we hold, how it is held, for what purpose, how it is accessed and obtained and how it is kept up to date. We have updated our data protection procedures and also our privacy policy which can be found in full here on our website.

Why we need your data

We need to know your basic personal data in order to provide you with ongoing communications and membership information. We will not collect any personal data from you that we do not need in order to provide this service to you. Although you already provided consent for communications from NSUN when you joined we need to remind you that you can unsubscribe from communications and cancel your membership at any time. Please email [email protected] should you wish to do this or for more information. You can also unsubscribe by clicking on the unsubscribe link at the end of our email communications.

As a reminder, our main communication is our weekly ebulletin, plus other occasional important emails e.g. about our AGM or about the current Mental Health Act Review. We will never inundate you with emails.

How we hold your data

All the personal data you provide is held on a central cloud database system (eTapestry by Blackbaud) and maintained by UK staff. All systems are password protected and no third parties have access to your personal data. (Exceptions to this would only be in circumstances where the law allows it).

How long we keep your data

Your information we use for communication purposes will be kept with us until you notify us that you no longer wish to receive these communications. More information on our retention schedule can be found in our privacy policy.

Your rights

If at any point you wish to see the information we hold for you, you can request this by emailing us at [email protected]. We can then amend or delete the information for you should you require. If you wish to raise a complaint on how we have handled your personal data, you can contact us at [email protected] to have the matter investigated.

If you are not satisfied with our response or believe we are processing your personal data not in accordance with the law you can complain to the Information Commissioner’s Office https://ico.org.uk/ 

If you have any queries about any aspect of our data protection/ privacy policy, please get in touch with us at [email protected].

We would like to take this opportunity to say how much we value your being a member of NSUN and to thank you for your continued involvement and support.