You can read more about the letter and the apprenticeship scheme here.

If you would like to sign the letter, please email us with your name as you would like it published, and your affiliation (group, organisation etc), if any.

To the Institute of Apprenticeships and Technical Education and the Peer Support Worker Apprenticeship Development Group,

A Request for Collaboration: Nothing About Us Without Us

As a group of peer supporters and our allies, we are pleased to see the development of an apprenticeship that would enable peer support workers to formalise their skills and abilities in this important role. We acknowledge and appreciate the developers’ attempts to recognise the value of peer support across communities and mental health systems in England. However, we feel that this particular apprenticeship proposal falls short of delivering an apprenticeship that will enable peer support to be diverse, flexible and valuable to a range of organisations and employers who might seek to employ peer support apprentices across the nation.

The roots of peer support in mental health are in social justice, human rights and community action. Throughout the history of survivor/service user advocacy groups like the Alleged Lunatics Friend Society (1840s), Mental Patients Union (1970s), Scottish Union of Mental Patients (1970s), people who have experience of psychiatric systems have gathered and organised to advocate for our rights and improved care. Through those groups, and others who developed around self-help and mutual aid, we have taken solace in each other, found learning and healing in our relationships and developed peer networks that exist to this day through organisations such as NSUN and the Hearing Voices Network.

The impact of organic community-based peer support for our communities has been noted and peer support worker roles have been developed by various health and community employers across England. There is a wide breadth of peer support and associated roles that have been implemented nationally, from grass roots, peer-led organisations through to the NHS. Core values and competencies vary, as do the tasks peer support workers undertake, due to the broad range of roles and requirements of different employers. The key underpinning criteria is that role is undertaken by someone with experience of mental health challenges, and that they share these experiences as part of the role.

Fidelity standards for peer support have not been identified in England, and the core values and principles have not been nationally agreed. Where core concepts in peer support are defined, they must allow for flexibility from self-determinist, non-health perspectives to peer support roles designed for clinical environments in order to allow for the breadth of variation in practice, perspective and context.

It is the opinion of the undersigned that the peer support worker apprenticeship is not fit for purpose across potential employers in England as (primarily but not exhaustively):

1. The peer support worker apprenticeship proposal has too narrow a definition of peer support to effectively prepare a workforce for the variety of roles they may encounter in England. Core concepts of grass-roots peer support that are absent in the role include:

· Social action/justice, human rights approach

· Importance of community

· Focus on relationships (rather than intervention)

· Expertise by experience (not intervention) is the core knowledge base

· Trauma informed/human experience approaches

· Learning together

· Non-coercive

· Moving towards mutually negotiated futures

· A focus on possibilities that emerge from a mutual relationship rather than focus on recovery goals

2. The principles of “mutual, reciprocal, strengths focused, inclusive, progressive, non-directive, recovery focused and safe” are not all universal and, by general definition, are not reflective in the duty descriptors for the apprenticeship.

3. The duty “Maintain a focus on their own personal self-care and well-being engaging in self- management strategies” is discriminatory in that it perpetuates the perspective that peer staff have a greater need and responsibility for managing their own wellbeing than other non-peer staff, and makes their own wellbeing a duty of the role in a way that is not required by their non-peer colleagues.

4. Peer support is about allowing for possibilities which arise from connecting through relationships rather than goals and ‘techniques’.

5. Record-keeping should be kept to a minimum and co-produced with the service user.

6. There is no evidence in the proposal that peer led grassroots (or larger) organisations have been an integral part of the apprenticeship design.

7. Not all peer support roles require the post holder to have accessed psychiatric services or have a psychiatric diagnosis.

8. We cannot forget the fundamental principle from which peer support developed: that peer supporters have experiences of the losses, oppression and marginalisation that diagnosis and treatment can cause, and an understand the wider impact of intersectionality that affect the complexity of ‘othering’ across our society.

It is proposed that the peer support worker apprenticeship proposal be paused and revisited with a wider group of peer collaborators from a range of approaches.

1. Peer support is a lived experience concept. Thorough coproduction with grass roots peer supporters, peer-led groups and organisations must be undertaken, if not a user-led approach to developing the apprenticeship with involvement from non-peer employers to ensure the apprenticeship is fit for purpose.

2. The identification of core fidelity standards must be clearly defined and enable a flexible approach to peer support around core values and principles.

3. The peer support worker apprenticeship must be relevant to the wide range of peer support roles in the UK, and not restrictive to a particular peer support model.

Beyond our concerns about this particular proposal, we believe we also need to ask an even more fundamental question: whether a peer support worker apprenticeship scheme is in fact necessary or beneficial. Due to the important ramifications of apprenticeships and associated fidelity standards, there needs to be a thorough, open and inclusive conversation which examines the benefits and drawbacks of any such scheme. This cannot be a rushed process and should involve all stakeholders, in particular user-led groups and peer support workers from both grassroots settings and statutory services. We urge the group who have developed this proposal to pause this process and invite a transparent and open discussion.

In many ways, a common principle in peer support applies to this proposal: if it’s not working for one of us, it’s not working for all of us. We request seats at the table to develop a proposal that works for peer support across all sectors and perspectives.

We write this letter to open the conversation and offer our views and guidance in collaboration. We offer our support in identifying a group of peer supporters who can work in the development team to submit a revised proposal which can be flexibly applied across England.

Signatories 

  1. NSUN (National Survivor User Network)
  2. Tori Otero, Lived Experience Lead, Beyond Barriers CIC
  3. Beth Ingram, Director of Hearts & Minds Peer Support
  4. Mark Allan, Hearing Voices Network, England and Mad Studies North East
  5. Lisa Archibald, PeerZone/Intentional Peer Support, Aotearoa, New Zealand
  6. Vikki Price, Intentional Peer Support Trainer and Peer Training Developer
  7. Hollie Berrigan
  8. Tony Roberts, Director, Fostering Change Ltd
  9. Keir Harding, Clinical Lead, Beam Consultancy 
  10. Jen Anderson, NHS Strategic Expert by Experience 
  11. Ginny Allende Cullen - Independent Occupational Therapist - Headspace Bolton C.I.C.
  12. Tamar Jeynes, LXP Consultant, Pink Sky Thinking
  13. Julie Fay RMN, RNLD
  14. Nina Bradshaw, Mental Health Professional and person with lived experience
  15. Sal Smith, Expert By Experience, NHS trust
  16. Len Demetriou, King's College London
  17. Alison Faulkner, Survivor Researcher 
  18. Sue Sibbald, Peer Worker, Sheffield
  19. Angela Newton, Founder, Lived Experience Matters
  20. Stephanie de la Haye, Chair, Survivors of Depression in Transition (peer led- peer support charity)
  21. Wendy Micklewright
  22. Jane Chevous, Founder and Director, Reshapers CIC; Co-Founder and Director, Survivors Voices (peer run)
  23. Chester Cornford, Clubber2Clubber
  24. Dr Timothy Buescher, Lecturer, mental health nursing, University of Hull
  25. Dr Sarah Carr FRSA, Senior Fellow in Mental Health Policy, University of Birmingham
  26. Fiona Naylor
  27. Katy Stepanian, Research Assistant
  28. Karen Machin, Independent survivor researcher
  29. Helen Leigh-Phippard, Service User Consultant
  30. Peter Beresford, Shaping Our Lives
  31. Dina Poursanidou
  32. Bristol Reclaiming Independent Living (BRIL)
  33. Rachel Yates, Person Centred Counsellor
  34. Kim Laidler, Lived Experience
  35. Nikki Mattocks, Award winning Mental health / Human rights advocate/Time to change ambassador/ young minds campaigner/ evolve peer support group leader/ amnesty international speaker
  36. Karen Passmore on behalf of DPAC Bristol & SouthWest
  37. Rosina Falla-smith
  38. Emma Hickey, Clinical Psychologist
  39. Diana Harvey, Peer Support Worker, Norfolk and Suffolk Financial Trust
  40. Cathy Scoines
  41. Neil Caton, peer group facilitator
  42. Sophie Robinson, peer support worker and engagement worker
  43. Patrick Wood, Co-ordinator, SUST (Sheffield User Survivor Trainers)
  44. H Cobb, Bibliotherapy peer facilitator, Kirklees
  45. Hearing Voices Network England
  46. Steve Flatt, Director, “Working Conversations”
  47. The Side by Side Network
  48. Shery Mead, Intentional Peer Support
  49. Chris Hansen, Intentional Peer Support
  50. Kay Weatherley, Expert By Experience, NHS Trust
  51. John McGowan, Social Workers Union
  52. Carol Reid, National Organiser, Social Workers Union
  53. Bec John, Peer Mentor NHS Wales
  54. Alison Cameron, Citizen Engagement Advisor
  55. Stephanie Allan, Glasgow University PhD student
  56. Simon Hough, Peer Supporter and Service User
  57. Katrina Squires, Peer Support Worker, Norfolk and Suffolk Foundation Trust
  58. Bethan Edwards, Service user researcher & activist
  59. Joanne Bailey, Peer Support Worker, Together UK
  60. Craig Frederick Clark, Support Worker, Nottinghamshire Care NHS Foundation Trust
  61. Rachel Waddingham, Survivor Practitioner/Researcher; Hearing Voices Network, England; ISPS UK
  62. Isa Sallinen
  63. Sue Wedge, Peer Support Worker, Mind in Haringey
  64. June Sadd, Independent survivor consultant, researcher and trainer
  65. South West Region SWAN (Social Work Action Network)
  66. Zoe Rivers, Clinical Lead, Beyond Barriers
  67. Lucy Gameson, Lived Experience Practitioner and Intentional Peer Support Trainer
  68. Polly Johnson
  69. Lisa Morrison (Lead Peer Trainer, SHSCT, Northern Ireland)
  70. Jess Worner, Interim Lived Experience Leadership Manager, Together
  71. Michael C Ashman, Independent Survivor Researcher/Educator
  72. Valerie Christina White
  73. Julie Woollacott, Service User, Mid Devon Community Mental Health Team
  74. Fiona Moore, Head of Service User and Carer Involvement and Experience, Midlands Partnership NHS Foundation Trust
  75. Sue Kilminster, Faculty lead for Health Professionals’ Education Research, Faculty of Medicine and Health, University of Leeds
  76. F.E.E.L. - Friends of East End Loonies
  77. Colin King
  78. Carol Jacques, Intentional Peer Support Manager & Community Lead
  79. Paul Baker, Hearing Voices Network Cymru
  80. Hearing Voices Network Cymru
  81. Akriti Mehta, King’s College London
  82. Elizabeth Thacker, Peer Support Worker, City Anchorage
  83. Mirabai Swingler, Only Us Campaign
  84. Dr Brigit McWade, Lecturer in Medical Sociology, Lead for Widening Participation, Lancaster Medical School
  85. Clare Ockwell. lived experience trainer/consultant
  86. Robin Barker, Director, Healthy Teen Minds, Registered Nurse - Mental Health
  87. Dr Stan Papoulias, Assistant Director Service User Research Enterprise, King’s College London
  88. Alan Ford
  89. Kirsty Wilson
  90. Dr Samantha Hartley, clinical psychologist
  91. Dr Glorianne Said, clinical psychologist
  92. Dr Sally Morgan, clinical psychologist
  93. Dr Natalie Tobert, medical anthropologist
  94. Jen Kilyon, Soteria UK, ISPS UK, ISPS Int
  95. Professor Paula Reavey, London South Bank University
  96. Satyin Taylor, Lived Experience/ ELFT Spiritual Care / NELFT Dialogue First / Trustee Buddhist Healthcare Chaplaincy Trust / Trustee National Spirituality and Mental Health Forum / Founder London group of Spiritual Crisis Network
  97. Daniel Pini Neis, Intentional Peer Support Trainer
  98. Frederick Craig Clark
  99. Dr Caroline Yeo, survivor researcher, University of Nottingham 
  100. Leigh Bell
  101. Clare Shaw
  102. Diane Wright
  103. Karen McNeil, service user
  104. Joanna Landeryou
  105. Laura J Welti, Bristol Disability Equality Forum
  106. Emma Hindmarch, expert by experience and former peer mentor
  107. Mohammed Zaman
  108. Daisy Abraham
  109. Dr Laura Wood
  110. Professor Diana Rose, Professor of User-Led Research, Co-Director Service User Research Enterprise, King's College London