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NSUN AGM report 1.11.11
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DANCING TO OUR OWN TUNES REPORT - Review & Reprint
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Unlocking Service User Involvement Practice in Forensic Settings
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MENTAL HEALTH SUMMIT - STRATEGY PAPER
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Mental Health Resistance Network - Judicial Review
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NETWORK
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NSUN Annual General Meeting: results of elections
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Critical Perspectives On User Involvement
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Centre for Mental Health briefings
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RECOVERY DEVON
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BLACK WOMEN: Recovery & Resilience report
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Report on the Place of Spirituality in Mental Health
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MENTAL HEALTH STRATEGY
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Recovery In Sight Enterprise brochure
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Service user groups
Local service user/survivor groups
Find and contact groups in your area.
Groups
| User Group Name | Contact Details |
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Tower Hamlets African & Caribbean Mental Health OrganisationTHACMHO (Tower Hamlets African & Caribbean Mental Health Organisation) is a User-led, User-run Voluntary organisation found in 1996. We support each other through various activities including; a weekly Thursday 'Drop-in' between 3:30pm - 6:45pm at Bow Community Hall. ‘Health Through History Initiative’, meets once a month to facilitate better comprehension of African Diasporic History and has produced two publications: Power Writers & African History at The Tower of London. We also have three exhibitions; The West Indian Seamen, Power Writers and The First Pan African Conference: 1900. We also have a Key Stage 3 schools education pack called, Sailors of the Caribbean. |
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Kensington and Chelsea Service User Network
The Service User Network (SUN) exists to create a network of users and survivors who care about mental health issues. Building on the experience of local and national user groups, the SUN exists to create a network of users and survivors who care about mental health issues and who want to be part of a dynamic and influential movement. |
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Wish
Wish, founded in 1987, is a registered national charity whose mission is to provide long-term, gender-sensitive support and services to women with mental health needs in their journey through the criminal justice and mental health systems and into the community, and to support women to have their voices heard at a policy level. |
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Catch-A-Fiya
Catch-A-Fiya is a survivor controlled forum for mental health system survivors from Black and Minority Ethnic (BME) communities. The primary purpose of the project is to establish and maintain contact with survivors from BME communities and support them to learn, teach and grow and address the inequalities that this group of people experience. |
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Brent User GroupBUG is an independent service user group working with people who use services to deal with mental health issues across Brent. We provide training to enable people to get more actively involved in their own recovery and to have a say about current and future mental health services. BUG facilitates the involvement of people using a range of methods, including surveys, workshops, forums and interviews. We encourage people to get involved in short-term projects such as improving services for women and for black and minority ethnic communities. We also offer training to staff, for example in using the recovery approach and improving user involvement within their services. |
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Together: working for wellbeing
Together is a national charity working alongside people with mental health issues on their journey to leading fulfilling and independent lives. By working intensively with each and every person who use our services, focusing on their hopes and needs, we can support them in building a positive and meaningful future for themselves – however long it takes. We believe that people with mental health issues benefit from leading their own lives and shaping the services they receive. We support regional service user groups and initiatives to ensure the voice of people using our services influences the organisation. |
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Hackney LINk
Hackney LINk provides the opportunity for the communities of Hackney to have a voice and effect real change. Local people in Hackney will be able to hold service providers and commissioners to account around the quality and effectiveness of Hackney’s health and social care services. Hackney LINk will be open and accountable to the community and the LINk will operate in a way that reflects the best democratic practices. Hackney LINk provides an opportunity for the public to help shape how universal and specialised services are developed and run, benefiting Hackney both now and for the future. Hackney LINk is committed to the widest possible representation in its work with all communities in Hackney. |
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Vauxhall City Farm
Vauxhall City Farm aims to; - Provide educational, recreational and therapeutic programmes - Provide activities for children and people of all ages, abilities & cultures - Contribute to community cohesion and regeneration - Promote environmental awareness |
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Revolving Doors National Service User Forum
Revolving Doors is a charity working across England to change systems and improve services for people with multiple problems including poor mental health who are in contact with the criminal justice system. Our mission is to demonstrate and share evidence of effective interventions and to promote reform of public services through partnerships with political leaders, policy makers, commissioners and other experts and by involving people with direct experience of the problem in all our work. Our vision is that by 2025 there is an end to the revolving door of crisis and crime, when anyone facing multiple problems and poor mental health is supported to reach their potential, with fewer victims and safer communities as a result. We offer the opportunity to be involved in Revolving Doors Agency to help to shape our policies and inform our work and speak on behalf of RDA at conferences, events or policy discussions. |
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Open Up at Mind
Open Up is a grassroots network of people with experience of mental distress, working together towards a world without mental health discrimination. We bring people together through networking, mentoring and training activities to share their ideas, resources and experiences. |
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Groundswell
Together we aim to: Enable homeless people to set up and run their own projects Increase homeless people's influence in policy and decision making Increase homeless people's meaningful involvement in the services they use |
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Crisis UKOur mission is to need homelessness, provide services to do this, work with national policies and raise awareness of this cause |
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BlessSouthside Partnership's vision is to support people to lead independent lives. We believe that everyone has rights and should be empowered to exercise those rights. Two key themes run consistently run through all of Southside Partnership's work which we describe as the Golden Threads and they are to achieve Person centred individualised services and sustainable growth. |
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Surrey Docks FarmCity Farm /Provident Society, working with schools, young people, volunteers & adults with learning disabilities. open to the public 6 days a week. |
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PSST
A service user led organisation which supports local mental health service user's voices be heard, through representation, campaigning and performing a watch-dog role for services across Waltham Forest. |
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MDF - The Bipolar Organisation
MDF The BiPolar Organisation aims to enable people affected by bipolar to take control of their lives through the services that we offer members. These include self help groups information and publications employment advice self management training programme 24-hour legal advice line for employment, legal, benefits and debt issues travel insurance scheme |
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Mad Pride
Mad Pride is about Mental Health System Survivors campaigning, fighting the cuts, overcoming discrimination in the UK and all over the world. Plus we are about putting on gigs, playing music, doing books, eating chocolate and having a bit of fun. Otherwise our lives would be grim indeed. |
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Sutton Mental Health Action GroupSutton Mental Health Action Group (SMHAG) is a local, independent, ‘service user-led’ organisation. As ‘experts by experience’ we want to share unique insights in order to promote and achieve good mental health practices. We aim to represent the views and opinions of people with experience of mental distress. SMHAG enables communication and interaction between mental health service users and the organisations responsible for purchasing and providing mental health care and services. We organise a number of Open Meetings each year to hear the experiences and views of people living in Sutton. Representatives attend a range of health and social care forums directly involved in the planning and development of local services, monitoring progress and putting forward practical proposals for improvements to the services people receive. We endeavour to ensure we respect and value each other and what we have to say. |
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CoolTan Arts
CoolTan Arts believe that well-being is enhanced by the power of creativity and is run by and for those with mental distress. We aim to promote positive mental health/well being, bringing about a change in how participants perceive themselves, enabling people to gain greater focus and to re-establish their relationship with society. We achieve this through quality arts education with professional outcomes such as public exhibitions, and social enterprise principles. |
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Stand To ReasonStand to Reason is a registered as a charity. Already we have several hundred highly motivated members all of whom have suffered or experienced the stigma of mental ill health directly or indirectly. Indeed over ten per cent of members have volunteered their time to our organisation. Our Board and Director have all experienced the stigma of mental distress directly or indirectly and our constitution enshrines that we are a service-user led organisation. |
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Imagine User Led Drop Ins Croydon
User Led Groups- these 5 days a week at various locations across Croydon. We are focused on participation and inclusion, and believe that everyone has something to contribute. Activities include peer support, creative writing, football, bollywood dance, sports friendlies, and sharing experiences. |
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Redbridge Concern for Mental Health
Redbridge Concern for Mental Health - established over 15 years ago - is a leading third sector organisation in the London Borough of Redbridge dedicated to promoting, improving and protecting the mental health and emotional well being of the wider community. We offer high quality services to local residents seeking mental health support. We also provide information and signposting as well as challenging the stigma and discrimination that people experience in their everyday lives. |
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Barnet Voice for Mental Health
Barnet Voice for Mental Health is an independent voluntary organisation. Our staff (both paid and unpaid) have used mental health services, as have all members of our Management Committee. We aim: To provide a voice for users of mental health services to influence the development and delivery of mental health services. We value our mental health experiences and harness them for the improvement of services in Barnet. |
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Survivors History Group
The Survivors History Group was founded in April 2005 to value and celebrate the contribution that mental health service users/survivors have made and are making to history. It is working towards a comprehensive history on this site. It will also preserve historical material in digital form, on this site, for easy access, and in printed and other forms. |
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Enfield Mental Health Users Group EMU
Enfield Mental Health Users Group (EMU) is a registered charity providing group advocacy for people using Mental Health Services in the London Borough of Enfield. The Charity is run by Mental Health Service Users |
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Florid
Florid is a website run by mental health service users for people who have experienced mental health difficulties. It’s a website which aims to bring together information relating to mental health in a way that is user-friendly and simple. Our mission is to provide a place where anyone who has ever been affected by mental health issues can feel safe, and can share experiences and opinions without fear of judgment or criticism. |
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Southwark Mind
Southwark Mind is an independent registered charity entirely run by and for local mental health service users/survivors since 1997. We work together to promote our empowerment, to campaign for better mental health services and to develop user-run self-help activities. |
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B.HUG
Brent Homeless User Group (B.HUG) was set up in September 2001 by homeless people who decided to work together with the aim of improving the homelessness situation in Brent. B.HUG has evolved greatly since then, from a small self-help group to a charitable organisation with an excellent reputation for its innovative work with homeless and disadvantaged people. Although now much bigger than when it launched, B.HUG still operates as a user-led organisation because a majority of its management team have personal experience of homelessness. Hence an ethos of inclusion is at the heart of what B.HUG does. We not only promote inclusiveness and the empowerment of homeless people but also lead by example. |
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Haringey User Network
Haringey User Network was set up 2006 to forge closer links between people who use mental health services and the people who run those services. |
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Independent Newham Users Forum INUF
Independent Newham Users Forum is an independent charity. It exists to support mental health service users, survivors and carers. INUF is based in Stratford and presides in Ithaca House, named after the Greek Island of Ithaca, a safe haven for those travelling through rough seas. If you are an individual experiencing rough times, INUF at Ithaca house, is a place to rebuild and repair, so you can resume your journey when seas are calmer. |
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HUBB
HUBB was established in 1991. The acronym HUBB stood for Havering Users Barking & Brentwood but our registered title is Barking, Havering & Brentwood Mental Health User Group (HUBB). We are universally known as HUBB, so have retained the title. We cover the geographical area of the London Borough of Barking and Dagenham, London borough of Havering and residents of Brentwood, Essex, whilst patients in Mascalls Park (formerly Warley Hospital. |
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RUN-UPRedbridge User Network User Pressure Group) RUN-UP is a user led service for people experiencing mental health problems and their carers. |
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Harrow User Group HUG
We help people to be at the heart of assessing how good or bad services are then deciding how to make improvements. We support people to have a real say in how THEIR services are managed. |
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Voicing Views
We are a service user project in Wandsworth that works with the Mental Health Trust, the Primary Care Trust and Adult Social Services on matters relating to the delivery and development of mental health services in the borough. We are based in Tooting and are part of Wandsworth Care Alliance. |
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The Lambeth Mental Health & Disabled People's Action GroupThe Lambeth Mental Health & Disabled People's Action Group is a Lambeth wide mental health charity is currently running a sports and recreation scheme |
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Lambeth User Engagement BodyThe Engagement Body is made up of Lambeth mental health service user and carer members and aims to give service users and carers the opportunity to work with others to influence the planning and delivery of local mental health services and monitor the performance of these. People are supported to use their experience as members of the engagement body to move into, for instance, employment, education, training, and to access other community services and support. |
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HEAR US Croydon's Mental Health Service User Group
Hear Us is Croydon's Mental Health Service User Group which acts as a coordinating body to facilitate, and ensure service users involvement in, the planning, delivery and monitoring of mental health services in Croydon. Helping to improve the quality of the services commissioned and delivered in Croydon |
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Creative Routes
Creative Routes is an award-winning interdisciplinary arts charity, run by the mad for the mad. Creative Routes celebrates and promotes the unique creativity of mad people, promoting mental well-being, and creatively campaigning against discrimination and for the acceptance of individuality in society. We run the best arts-based workshops available to mad people in the UK, collaborating with prestigious organisations such as the Young Vic Theatre, the Royal Festival Hall, South London Gallery, Royal Court Theatre, Live Music Now and Endymion. |
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Mad Chicks Losing IT
Mad Chicks is a new movement, which focuses on issues specific to women mental health service users, using creativity to achieve our aims and attract attention to our causes. We have developed from within Mad Pride, an international user-led movement which challenges discrimination and misinformation in relation to mental health and celebrates mad culture. |
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Core Arts
Core Art aims to: Use the arts to break down many of the prejudices associated with people with mental health problems and promote access and participation. Provide an environment in which our members are able to express themselves and their ideas and know they will be heard and respected. respond to our members' creative assets, drive and imagination and celebrate their talent and abilities through exhibitions and events. Ensure the organisation’s direction is dictated by those who use it. |
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Service User Research Enterprise (SURE)The Service User Research Enterprise (SURE) undertakes research that tests the effectiveness of services and treatments from the perspective of people with mental health problems and their carers. SURE aims to involve service users in a collaborative way in the whole research process: from design to data collection, through to data analysis and dissemination of results. SURE was launched in 2001 on the premiss that the research priorities and perspectives of service users were different from those of people who work in mental health services, and from those of people with solely an academic background. It is now one of the largest units within universities in Europe to employ people who have both research skills and first-hand experience of mental health services and treatments. This experience adds a wealth of understanding and alternative perspectives to the local, national and international research they carry out. |
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Hammersmith & Fulham Mental Health Network
Hammersmith and Fulham Service User Network (SUN) exists to represent the mental health service user perspective mental health services. We aim to help people who use mental health services get involved in influencing and improving the services they use. The Network is open to any service user living or using mental health services in Hammersmith and Fulham. We are also developing service user involvement in films and exhibitions about experiences of mental health and mental health services. The Network is managed by a core group of service users and is facilitated by the Hammersmith and Fulham User Involvement Project (Community), which is commissioned by Hammersmith and Fulham Primary Care Trust (PCT). |
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Men's Health ForumMHF is a charity that provides an independent and authoritative voice for male health in England and Wales and tackles the issues and inequalities affecting the health and well-being of men and boys. |
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National Voices Forum
The National Perceptions Forum (aka Voices Forum) is the (ex) service user and survivor network within the charity Rethink severe mental illness. It is important to realise we do formulate our own policies independently, but also use Rethink's charitable status. The Forum exists to benefit those with schizophrenia (and similar conditions). Schizophrenia often creates long-term problems, and we believe that mutual support is one of the best ways to minimise them. We are a SELF-HELP group, run entirely by users of mental health services. |
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Sound Minds
Sound Minds is a user-led, emerging social enterprise, improving the lives of people who are under the continuing care of community mental health teams by providing opportunities to create music, visual art, video and to write and perform. Arts events raise the awareness of the wider public about mental health issues and combat stigma. |
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Shaping Our Lives
Shaping Our Lives is a national user controlled independent organisation that was started in 1996. We work with a diverse range of service users and aim to support the development of local user involvement to deliver better outcomes for service users. |
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Sutton 1in4 Network
Sutton 1 in 4 Network is a new community organisation for people who have done or do experience mental and emotional distress and live in Sutton. We work as a co-operative where members share their skills, knowledge and experience. |
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Social Persepctives Network
The Social Perspectives Network is a unique coalition of service users / survivors, carers, policy makers, academics, students, and practitioners interested in how social factors both contribute to people becoming distressed, and play a crucial part in promoting people’s recovery. We aim to share work and information looking at mental health from a social perspective; to support people to put social perspectives into practice; and influence the development of mental health policy from a social perspective. SPN’s work takes the form of study days, published papers, media campaigning, and information provision through our website. SPN is committed to working alongside regional and local projects and promotes links to NIMHE Regions. |
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Equalities National Council
Equalities is the National Council of Disabled People, Carers and those with long term Impairments from Black & Minority Communities. Equalities is an independent Enterprise which is run by its service users, who all have a good understanding of the barriers disabled people and carers from our communities experience when trying to get the help and support we feel we are in need of. We are working to change a culture rooted in the narrow-minded way in which service provision is delivered to us. We aim to deliver innovative services and expect the same from other service providers. |
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Mental Health Research NetworkThe Mental Health Research Network encourages people with personal experience of mental health problems to work with us, and get involved in individual research projects. The studies we support all aim to improve NHS services and treatments – and we believe the people who use those services and potentially benefit from those treatments can give invaluable advice to researchers. Each of our eight regional offices (called hubs) involves people with experience of mental health problems in their day-to-day work, and introduces individuals to research teams who want expert advice when planning or carrying out their studies. |
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Social Spider
Social Spider was founded in 2003 as a not-for-profit organisation. Any surplus funds support a portfolio of Social Spider generated projects furthering our commitment to widening access to opportunities and availability of information and resources. One in Four is Social Spider’s flagship project. It’s the only national magazine for people with mental health difficulties, written by people with mental health difficulties. It’s a quarterly full colour magazine that takes information, inspiration, real life stories and hope to people who need them. It’s about making sure that people with mental health difficulties can have the lives that they want to have. |
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Young Minds
YoungMinds is the UK's only national charity committed to improving the mental health and emotional well-being of all children and young people. |
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New Beginnings
The City & London service user led group. |
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RootsWe are a service user led group providing activities for psychiatric wards in Lambeth |
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Ealing Users' ForumEaling User Involvement Service helps our clients in Ealing have a say in the the planning and monitoring of the services they use, with the aim of making them more user-friendly. We've established a user forum and set up a user-focused monitoring system for inpatients. |
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Harrow MDF Bipolar Self-help Group
MDF The BiPolar Organisation works to enable people affected by bipolar disorder / manic depression to take control of their lives. |
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Hammersmith & Fulham SUNThe User Project was created in 1998 to widen service user representation in the borough of Hammersmith & Fulham. Service Users are those who use or have used mental health services. Hammersmith and Fulham User Project helps people who use mental health services to get involved in decisions about how those services are run. |
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Loud & ClearSince we started out, advocacy and user involvement have become increasingly mainstream. Patients' voices are finally being heard, and we are very pleased to have been agents for change in this movement. |
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Bowhaven
Bowhaven is a user run mental health day centre. Established in 2004 with funding from the Monument Trust to employ one service user as a development worker, BowHaven initially catered for 5 user led groups funded through the Social Services small grants. Over the years the number of groups has increased to 7 on average 80 mental health services users accessing the centre, but the membership is far greater. |
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Voice Collective
Voice Collective groups are peer support groups for young people who hear, see or sense things that other people don’t. They are safe spaces for young people (aged 12-18) to meet others who understand what they’re going through, without worrying about being judged or made fun of. |
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Mental Health Resistance Network
The Mental Health Resistance Network is a new group which came out of the action group working on the Mad Pride October 2010 demo. It does not have any borders but is for the moment mainly centred around South and East London.It is very closely linked with Mad Pride UK and the South East London cell and other organizations like Creative Routes, Cooltan Arts and Southwark MIND. And it works alongside anti-cuts groups from the Disabled People's movement as a whole. |
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